Author	Topic:   Newly Diagnosed
Susan	posted 2/1/06 7:31 PM       I was diagnosed today via echo with MVP. For me it was a relief to know that otherwise my heart is in good shape. I need to take a pill for mild hypertenson. But at least now there is an explanation for my panic attacks which have plagued me for years. Also I am very sensitive and have bad reactions to lots of meds and that too is part of MVP. No cure, just treat symptoms, but now when my chest gets tight, I don't have to panic anymore. What a relief.............
Barbara	posted 3/22/06 7:34 PM       Hum. The panic attacks/anxiety are ruining my life. Does just knowing htat you have mvp make them go away? My echo is next Tuesday, but i'm really starting to think my doctor is right and that i have this mvp. I'm only 27!! He said it's more prominent in women (me) and that I'm tall doesn't help. Anyone know why that is?
Jordan	posted 3/28/06 4:29 AM     I was mis-diagnosed with a leaky tricuspid valve at 19 and found out two weeks ago that I actually have a rather severe case of MVP with regurgitation - I'm now only 24. From those of you who have lived with this condition - what can I expect in terms of lifestyle change? I'm relatively active and in good shape and I'm afraid I'll end up lethargic and short of breath. Should I be worried? I'm still kind of freaking out about it.
Ann	posted 6/22/06 7:28 PM       I have been diagnosed with mitral valve prolapse regurgitation around 6 to 7 months now. My MVP is severe. I have gone to have test after test and all came back saying I had severe MVP. I have gone for 2nd and 3rd opinions (even out of state) and they all said the same thing. Doctors have said that eventually I should have surgery to repair the valve. Boy, did that blow my mind! That meant open heart surgery. It came down to this: I am having heart surgery mid-July 2006 in New York. But it will not be open heart. It is a new way of doing heart surgery called minimally invasive surgery. This is the new way of having heart surgery and recovery is much quicker. I am kind of worried about having any type of surgery on my heart. But in the long run, I know that I will be feeling better. The risk factor is less that 1%.
Amy	posted 6/23/06 6:28 PM     i have severe regurgitation also, they will replace my valve eventually, probably in the next 5 years. Of course i fall into the 2% that have the severe form of mvp. i just take my anxiety meds and try to talk myself thru the bad days.
Jessica	posted 7/3/06 1:50 AM       I was diagnosed on Tues 6/26/06 and my doctor told me I inherited this from my mother. My mother passed away on 6/16/05 from a blood disease. I am scared that I also will inherit that. 3/4 of the day my heart is beating out of my chest and the pains I get in my chest are bad. But it makes me think back to when I was 18 and getting really bad pains and the Dr. told me it was nothing. Now being 27 and wondering if my mvp is really bad the Dr. just told me I had it but not if it was severe or not. http://myspace.com/tiggerz522
Rick	posted 7/9/06 0:19 AM       I have had the surgery for severe regurgition over a year ago. It is the best thing I have ever done! There was very little pain involved and I was better than normal 3 weeks later. Don't be afaid of it! Just be sure you go to a surgeon that will repair it instead of replacing it. That is very, very, important! If you need more info, email me.
Amy	posted 7/11/06 8:34 PM     RICK, I did email you... please send me some info!
Rick	posted 7/11/06 11:01 PM       It's on the way.
Rick	posted 8/29/06 9:02 PM       Did you have your surgery? How are things going?
Rick	posted 8/29/06 9:04 PM       Ann, did you have your surger? How are things?
Tina	posted 11/7/06 10:01 PM     I was recently diagnosed with MVP, for years I had heart palpitations and panic attacks. I had a holter put on and it came out normal. I was always wondering why I felt this way if I had no disease.I would rush to the ER complaining of palpitations at night especially, and finally one resident told to go to a shrink it was in my head. This past year I started to really get panic attacks and palpitations and a heaviness on my arm and back. The doctor did an echocardigram and there it was, I have MVP. I am 35 and it seems that the symptoms are really hitting me hard now. I think stress brought it on. My doctor prescribed Propanonol 40mg, but I refused to take it. It was only for 15 days and then I had to wean myself off of it and only use it for emergencies. Anyone got prescribed meds? I dislike this feeling of always being tired or ailing, I wish there were a cure.
Dawn	posted 12/8/06 9:41 AM       These past few weeks I have had an increase in palpitations, and last night after some stress I was shaky, felt like an elephant was sitting on my chest, and felt like I couldn't get my heart to calm down unless I slept or stayed down. I still don't feel much better after 7 hours of sleep. I put on my search engine "palpitations" and found out so much about MVP. I think I might have a problem with that and have had more trouble this week after getting a gold crown put on than ever. Is it something I need to see a doctor for right away? I am leaving on vacation in 9 days - I want to make sure I am safe and enjoy it!!

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