Author	Topic:   need advice for daughter with MVP
Sharon	posted 10/6/06 3:08 PM     Hi, my daughter who is 26 was diagnosed with MVP 5 yrs ago & she definitely has the syndrome as well. She was then put on toprol which she only takes when she feels like it. She does not know why, but she can not bring herself to swallow the pill. She gets dibilitating chest pains occassionally, migraines (which run on her fathers side of the family), has little or no appetite, (has very poor diet), ringing in the ears, you name it, she has it. She is always stressed out over little things (at least they seem little to me), she makes mountains out of molehills, especially with her boyfriend. She always looks at the negative instead of the positive & never seems to have any energy or is happy. She has been in therapy for about 6 moths which she is not sure whether or not it has helped her. Sometimes I don't think she wants to help herself. She has no confidence in herself. She finally decided a few weeks ago to take an antidepressant which she says she is taking. She is also scheduled for her 2nd echo in a few wks. I have done research on this disease & I know exercise, diet & taking your med. is vital. How do I get her to understand this. She will exercise for a while but does not stick with it. She lives 6 hrs away from me which is hard, I love her so much & want to see her happy. How can I help her help herself?Are these above symptoms I mentioned familiar with anyone?
DD (board moderator) (Moderator)	posted 10/12/06 0:40 AM     Hi Sharon...your story sounds very familar. I was exactly the same way when I was first dignosed and in some ways I still am. I hate taking any kind of medicine, especially new medication. I wouldn't exercise because it was just soooo hard. It's still hard but I exercise more than I used to but still don't do it enough and it took a hospital stay for that to happen. I had an acute attack of pancreatitus due to triglyceride levels going to almost 8000 and doctors still don't know why. Anyway, I know this might not be much help, but maybe it gives you some comfort to know that she isn't the only one. She'll get used to taking the meds, I'm on a bunch of 'em now and it's not so hard to take them anymore....Hope everythings looks up soon....God Bless.....DD
Judy	posted 12/15/06 11:11 PM     Hi! Please tell your daughter to give up caffeine (coffee, Coke, Pepsi, tea) and with lesser importance, sugar. Please see my post on caffeiene & sugar. I'd like to should it from the rooftops that caffeine is not only bad, I think it's what started "MVP" in the first place.... in fact, I'm not sure "MVP" really exists. You have to give it time, i.e. if you give up coffee and feel terrible 3 weeks later, DON'T QUIT. Give it at least 3 months. Best of luck!
Sally	posted 1/1/07 10:18 PM     I totally agree with Judy. Caffeine is deadly and that includes chocolate, hot chocolate, all caffeinated drinks ..also tea and anything that has a stimulant in it. I watch my sugar intake very carefully also alcoholic beverages though I can't remember what age your daughter is. Diet and exercise are true helpers for this condition.

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