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Author Topic:   Just diagnosed
Vivien posted 9/18/07 9:05 AM    
Does anyone use this site anymore?
Gill posted 3/11/08 4:53 PM    
Hi Vivien
sorry for the very late reply, as you can tell this board is not used much at all. I would like to see it used more and am hoping to help make that happen. Please keep checking to see if I succeed!!
irene posted 7/23/08 2:16 PM    
i developed dystonia over 8 years ago after having hadf M.E. for the previous 8 years. Drs say they are unrelated, so I was just unlucky. However I often find that having the two conditions can sometimes cloud the issues surrounding them when it comes to medical care. Even now I get the odd skeptic in the medical world & come away feeling frustrated, upset & angry- I am not a headcase but sometimes made to feel like one, however unintentional. Anybody else had the same, if anybody is looking at this site? I found it by accident, but have joined A.D.D.E.R. earlier this year.
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